NPKUA Study

The Clinical Neuropsychology Laboratory at the University of Missouri would like to invite you to participate in a new study we’re conducting. In the study we’ll be investigating thinking and learning abilities in people with PKU (phenylketonuria). Our goal is to expand our knowledge and understanding of PKU by studying basic skills such as attention, memory, and executive abilities.

People who take part in the study will be asked to do a variety of things including pushing buttons on an iPad, remembering words, and naming pictures. Also, we will measure the anatomy and activity of your brain using a brain-imaging camera called an MRI scanner. Participation takes about 5-6 hours during appointments scheduled at your convenience (weekends and evenings are okay). Additionally, we can schedule your participation so as to minimize potential conflicts with your work/school. (Many people come and participate over the weekend.)

By participating in the study, you will be making a contribution to our understanding of PKU and how it can affect the developing brain. This may be an important step in developing better teaching strategies for people with problems in thinking abilities.

You will receive monetary compensation for participation in the study. You may also be reimbursed for travel expenses such as mileage, gas, or meals, during the study, with respective receipts. Additionally, we are happy to cover airfare, hotel, and other travel expenses for participants traveling from a distant location.

Who can take part?

Individuals ages 18-35 years old who have previously been diagnosed with PKU. We are specifically looking for individuals with complete lifetime phe level data. Additionally, we are looking for individuals ages 18-35 years old who have no history of PKU or other major neurological/psychological conditions.

If you would like to participate, or if you have any questions, please feel free to contact us by contacting Emily Abbene, Research Coordinator, Email: Abbenee@missouri.edu; Phone: 573-884-8109.

Thank you for taking the time to consider participating in our study.

This study is funded by the National PKU Alliance (NPKUA).